Living Life Beyond Height
One Step, One Heart, One Community

The Little Legs Big Heart Foundation is dedicated to empowering and supporting individuals with skeletal dysplasia and their families.

We strive to redefine inclusivity and acceptance within the dwarfism community, encouraging everyBODY to resiliently Live Life Beyond Height. It doesn’t matter how long your legs are, you can only take one step at a time.

What We Do

We engage with local and national communities to raise awareness about skeletal dysplasia and provide essential support to individuals and families.
We provide comprehensive educational materials to help individuals with skeletal dysplasia and their families make informed decisions. Our resources cover a wide range of topics, including treatment options, daily living adaptations, and advocacy tips.
COMING SOON! Our directory will feature a comprehensive list of pediatric and adult skeletal dysplasia medical specialists nationwide and eventually worldwide, ensuring that individuals have access to the best care possible.
COMING SOON! We are developing a network to offer emotional support and connect individuals and families affected by skeletal dysplasia. This initiative will provide a safe space for sharing experiences, offering advice, and building lasting connections.
We don’t know unless we try and together with professionals and companies, we are committed to advancing research in the field of skeletal dysplasia and improve existing treatments to enhance patient outcomes.
Our Annual Conference connects patients, families, and medical professionals. Featuring medical lectures, family-led discussions, and fun for everyone, it focuses on improving the quality of life for those living with skeletal dysplasia and fostering community connections.
Through international collaborations and outreach efforts, we promote a culture of empathy, understanding, and acceptance worldwide. We strive to raise global awareness about skeletal dysplasia and advocate for the rights and inclusion of individuals with the condition.

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How You Can Help

We need YOU! Whether through volunteering, donating, or spreading awareness, your support helps us continue our vital work. Together, we can create a fun, inclusive community of hope, strength, and limitless possibilities for children and adults with skeletal dysplasia.

Volunteer

Join our team and make a difference by assisting at events, participating in community outreach, or helping with administrative tasks. Share your professional expertise and become an advocate by spreading awareness about our mission.

Sign Up

Sponsor

Partner with us through corporate sponsorships to support our annual conference, fundraising events, continued advocacy efforts or provide in-kind donations of goods or services that help us reduce costs for these events and further our mission.

Sponsorship Details

Donate

Make a one-time or recurring donation to support our ongoing initiatives and help us provide essential care to individuals with skeletal dysplasia. Consider hosting a fundraiser, or leveraging your employer’s matching gift program to maximize your impact.

Give

The Book

Dive into, our founder, Kristen’s, memoir on growing up with achondroplasia dwarfism. A woman who has faced adversity head-on since childhood details life growing up with achondroplasia and learning that she was born to go against the grain from the very beginning. Each chapter is filled with candid reflections, poignant moments, and powerful lessons that will resonate with anyone who has ever felt different or faced obstacles. Her story is a testament to the power of resilience, the importance of self-acceptance, and the beauty of living life authentically.

Get your copy today:

Amazon
Barnes and Noble
Balboa Press

Big love. Big dreams. Baby steps.

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Impact

“We are so thankful and blessed to have Kristen and the Little Legs Big Heart community in our lives. The inspiration and incredible impact that she has on our journey and so many others is so admirable. We love that Kristen keeps us connected with other families that share similar journeys. Thank you for staying involved and connected through communication and planned activities.”
-Love, Lisa and Cambell Osborne
Impact

“Evie was born with pseudoachondroplasia in 2009 and has been on an incredible, life-changing journey since then with the mentorship and support of Little Legs Big Heart and the unicorn in our lives—Kristen. The Foundation is a bright light of hope in our lives. One that is inclusive and on a constant mission of education and advocacy for all people with a skeletal dysplasia will bring great change and support to our life.”
-The Henderson Family
Impact

“Last year I faced a serious scare with my back, and Kristen from the Little Legs Big Heart Foundation immediately stepped in by arranging travel and medical care with a world-renowned skeletal dysplasia team. Thankfully my back was fine, but doctors recommended leg surgery to correct bowing, which Kristen and the Foundation supported every step of the way by scheduling appointments, providing medical funding, and offering constant reassurance. Six months later I underwent surgery in Florida, and Kristen stayed in close contact, calming my anxieties and guiding me through recovery. Now, two months post-surgery, I feel incredibly happy and grateful, and none of this would have been possible without Kristen and the Little Legs Big Heart Foundation.”
-XO, Gywn